Our little girl made her arrival May 16th at 4:03am. My labor was so quick! I started with contractions at 1:30am, got to Women's & Babies at 3:45am, and Aubriella was born shortly after arriving!
God has made Aubriella a little extra special. I would like to share with everyone what makes Aubriella so special. Once she arrived and while the nurses were drying her off, the doctor said she needed to inform us of a deformity. Immediately my heart sank. My pregnancy was not the easiest and towards the end I started to have complications. I do not owe anyone any explanation. Close friends and family have told me not to even write this post. I feel I need to write this post because I want freedom from questions, freedom from looks while in public, and freedom of people talking about us. Sure I'm not going to get that 100%, but I guess what I am thinking is that if I provide everyone with the information I have and properly introduce Aubriella, I wont be bombarded with questions and I will finally feel free to post all of her pictures. Some of you may have noticed in the few pictures I have posted. While others have not.
Aubriella's right hand is smaller than her left. She has been diagnosed with symbrachydactyly.
What is Symbrachydactyly? Symbrachydactyly occurs during normal embryonic development. When a baby’s hands begin to form in utero, they are shaped like mittens or paddles. Then the fingers divide. In babies with symbrachydactyly, the fingers (and sometimes the hand and arm) don’t fully form during this time. This may happen because the area doesn’t get enough blood flow or because of some other problem with the tissue. It’s not caused by anything the mother did or did not do while she was pregnant. This limb difference occurs in every 30,000 to 40,000 births. It’s not passed down in families (inherited). Children with Symbrachydactyly grow up still being able to do everything that children without symbrachydactyly can do. Aubriella will be able to do everything Asher can do!
Aubriella does have all 5 fingers on her sym hand, just the first 3 are shorter than what we are used to. She is able to move her hand, grab things, and move each individual finger. Her thumb is fully developed and she has a good portion of her pinky. She has tiny little finger nails on all her fingers. We have a specialist that we will be traveling a lot to see. She has introduced us to some great support groups and other parents who have children with Symbrachydactyly. Aubriella and Asher are going to grow up to do amazing things! Asher is really warming up to her and loves to give his sister kisses! I think that about covers it all. One last picture of our precious little girl!
Jessica Snider Photography is who took all of Aubriella's photos. She does amazing work! She has taken all of our family photos, maternity photos, & photos of our children! Check out her website. www.jessicasniderphotography.com/home The information I provided is from Lucky Fin Project . Along with what our specialist went over with us. luckyfinproject.org/
2 Comments
Victoria Graybill
6/11/2018 12:02:42 pm
I love you all! Beautiful photos 💖
Reply
Charlie
6/12/2018 12:48:18 pm
I'm so proud that you posted this. You babies are beautiful and their differences make them all unique.
Reply
Leave a Reply. |
AuthorMomma of 2 Archives
February 2021
Categories
All
|