I wanted to give everyone an update on Aub's most recent doctor's appointment!
Thursday was a rollercoaster with my emotions. First of all I'm mom. So anything related to my kids whether good or bad I tend to get emotional. Nothing major happened, but I guess I had though things were a little different than they appeared to be!
Aubriella's appointment was to check in and make sure she was meeting her baby milestones and to get x-rays of her hand.
(if you have not yet read my Introducing Aubriella post or have met my daughter, please read that post first! otherwise you will be lost)
Aubriella's specialist is in Deleware. They are amazing!! Her doctor takes so much time with us and constantly asks if we have questions. Also if I leave the appointment and forgot to ask something, all I have to do is e-mail her!
We arrived and Aub's got her x-rays. She was such a champ and actually laughed through the x-ray. We then went back to talk with her doctors.
Dr. Ty was so pleased with Aub's hand and how much she uses it. At this time Aub's does NOT need any physical OR surgery! Awesome news! Her doctor did say that maybe down the road if need be we could look into lengthening her pinky. With doing that it would give her a better pinch for her to grab and grasp items. At this time they don't do surgery unless its necessary. But at this point she is doing extremly well and we don't have to make any decisions.
Aubriella has met all of her baby milestones and once again is doing great! We got to review the x-ray with the doctor next. The x-ray showed that Aubriella does have a full thumb, bones in her hand, and currently no bones in her 4 fingers. The doctor did say that the bones could just be cartilage and that when she comes back when she is 1 that there maybe some bone growth. As for now there is none.
I had really high hopes that she did have bones in her little fingers. I truely thought there were. Especially for how well she uses her hand. Time will only tell if she will have some bone growth or not. I am trying to stay very positive about this, but it is a little difficult to wrap my head around.
Secondly, I don't remember if I shared or not about Asher having to see a Neurosurgeon. When he was about 18 months the pediatrican recommended we see a pediatrician & a plastic surgeon due to his head shape.
Around 4 months old I questioned that Asher had an indent in the back of his head. I was always advised that it would pop out when he was older and that it was nothing to be concerned about. The Neurosurgeon & Plastics said that Asher did not have anything wrong with him and that sometimes that just happens. They said there was no need for a special hemlet and that possibly the indent could pop out. We left it at that and found peace in the answers we recieved.
Well at Aub's appointment Dr. Ty had pointed out that Aubriella has the exact same indent in the back of her head. I was already aware of this & had questioned the pediatrican, whose was once again not concerned. Since Aubriella was born I was afraid that she would develop this indent & that maybe I had failed Asher as a parent and did not give him even tummy time. With that being said Aubriella is constantly on her belly & I had decided to baby wear the majority of the time. Well appreantly none of that had helped, because we are back in the same positon.
Anyways her doctor has referred us to a Neurosurgeon in DuPont and we go in 2 weeks. We were advised to take Asher so we could talk to the doctor about him and compare their heads.
I'm trying not to freak out about seeing a Neurosurgeon again because I feel & know in my heart my kid's heads are fine. If you have ever met Asher you know how smart he is. He can count to 40, knows his ABC's, knows his colors, shapes, and is potty trained. (i am very proud of him so it felt fitting to brag a little there). If there were a Neurologial issue he most likely would not be that advanced is what we were advised. Plus Aub's is hitting all of her milestones and then some.
Saturday we went to a upper extremity event at the the hospital. Can I just say WOW!! So this is the first place where I did not feel that people were staring at Aub's hand. Also I met some wonderful people! It was so great to talk with others that have kid's just like mine. I was able to ask questions and got amazing responses. It felt so amazing to be there.
Afterwards I felt so much better. I always want to be strong for Aubriella, but I am human and I am mom. I worry alot. Especially about her future. I felt like being about to talk about fears and have questions answered lower alot of that anxiety and what if questions. I know this is not always going to be a smooth road but having a support system surely helps!
So overall the appointment was great! We go back in June 2019 for more x-rays. As I said I had hoped for somethings to be different, but you know what she is doing well without and will continue to do well. I am anxious for the Neurosurgeon but I am remaining positive!
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Momma of 2